tag:blogger.com,1999:blog-3854908515120917420.post1758818804843709020..comments2023-09-28T22:12:54.186+10:00Comments on Bittersweet - Our Toddler & Type1 Diabetes: Accepting changeJuleshttp://www.blogger.com/profile/15199571808950027287noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-3854908515120917420.post-61162189337784538812011-04-05T04:14:38.181+10:002011-04-05T04:14:38.181+10:00I know the sadness takes a back seat (when things ...I know the sadness takes a back seat (when things are going well) in your day to day life; it is always there in the background. Diabetes is a daily threat, so you will always protect this child (mine currently calls me a "helicopter parent", though I really am not) as you would protect any of your children from any threat. From your daily routine, from your actions, they will learn from you how to protect themselves; and you will be so proud when they take on some responsibility themselves because they will be able to keep safe, first, when away from you for a few hours, then on their own as an adult. You will act like a wild animal to protect any of your children; that is a mother's instinct. Yes, it DOES get better; yes, there WILL be better and safer insulins or treatments, I am sure of it. And someday..... a cure. My heart goes out to you, as I think it must be especially difficult treating a baby or toddler who was diagnosed.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-26758500196315513342011-04-04T17:27:34.462+10:002011-04-04T17:27:34.462+10:00oh, Jules, I appreciate this post more than you kn...oh, Jules, I appreciate this post more than you know. Today I felt almost postal as we left a birthday party and I was just livid internally about juice boxes. Yes, juice boxes. I hate those damn things, yet sometimes my child needs them. <br />I wonder so many things like you about this disease and my baby. I wonder if my heart won't ache when he hands me his pump once again and says, "I'm done" and I get to re-explain that he can't be done with it just yet, but someday. I am struggling so much with this lately and can't seem to get to a point where it feels "okay"...but each day I am more and more thankful for my children knowing that nothing is ever promised, not a working pancreas, or blood that clots (my nephew has hemophilia), or completely formed limbs (my niece had to have a leg amputated due to malformation) so...there is soooooo much to be thankful for, right? (says she while sobbing once again!)Sarahhttps://www.blogger.com/profile/03210820513382353417noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-13954164907510682062011-04-04T08:56:29.870+10:002011-04-04T08:56:29.870+10:00Yes Julie, it will always be there. Even though A...Yes Julie, it will always be there. Even though Andy is not my baby, in some ways, I think he will always be more vulnerable than Katie. Whether it is the 4 months of high blood sugars that we didn't know about or the severity of the mutation we seem to be noticing in the boys in particular, or the length of time he was on insulin before discovering the miracle of glyburide, he is behind. He is not developing the way he should be. Katie is much more independent than he ever was even if she is delayed a little. I think remembering that frail little body at 4 months old that was the size of a newborn will always be burned into my brain. Seeing all of those tubes and wires attached to him will forever be the reminder that we almost lost him. I don't think about it every day anymore, but the ache is still there when I do think about it. Hugs to you from across the ocean. You are a great mum and he will always be your baby. That's OK.Christyhttps://www.blogger.com/profile/13816124492935995113noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-72054414180104849912011-04-04T06:10:47.890+10:002011-04-04T06:10:47.890+10:00Hi. I just want to introduce myself to you. My son...Hi. I just want to introduce myself to you. My son, Brandan, was diagnosed when he was 12 months old. He's 4 now, almost 5. I have 2 more sons now, 2 y/o and 10 weeks old. Nice to meet you. :)Fae-Mom https://www.blogger.com/profile/16430559478665907783noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-72202955942381922262011-04-03T22:24:32.197+10:002011-04-03T22:24:32.197+10:00I understand and relate to your feelings of sadnes...I understand and relate to your feelings of sadness day in and day out. We are almost to the year mark as well. I have no words of wisdom, but thanks for sharing so I know I am not alone in how I feel.NikDuckhttps://www.blogger.com/profile/00339827779693006419noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-82637866721337719462011-04-03T21:29:54.177+10:002011-04-03T21:29:54.177+10:00Jules...I love you. I understand the pain. It wi...Jules...I love you. I understand the pain. It will eventually feel like the dull knife lodged in your right atrium (a part of your heart). It takes awhile to get there...to that place ... and it is different for each of us. You are doing such a fantastic job and might I add, I love your humor and sarcasm. You make me smile each time I come over here...even when it is a deep post...there are always some "Jule-isms". xoxoAnonymoushttps://www.blogger.com/profile/00895126112651188056noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-10650340992504244732011-04-03T12:35:06.967+10:002011-04-03T12:35:06.967+10:00Jules,,
Even though I read all the time, I guess I...Jules,,<br />Even though I read all the time, I guess I didn't realize he was 18 mons. i pictured him older. And, 18 mons is so little. Such a baby, esp when he's the baby of the family. How can you not feel the way you do? I can see why you picture him as vulnerable. All babies are, esp. ones with diabetes. Love to him!Amy@Diapeepeeshttps://www.blogger.com/profile/10155562802806704713noreply@blogger.com