tag:blogger.com,1999:blog-3854908515120917420.post6238231897613809313..comments2023-09-28T22:12:54.186+10:00Comments on Bittersweet - Our Toddler & Type1 Diabetes: A post with no nameJuleshttp://www.blogger.com/profile/15199571808950027287noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-3854908515120917420.post-8887888593502797062011-08-29T21:19:50.921+10:002011-08-29T21:19:50.921+10:00Jules,
Hugs. I'm sorry the appointments are so...Jules,<br />Hugs. I'm sorry the appointments are so tough. I think the only Paed endos are at the 2 hospitals. So even if you go privately the appt's will be there. But there should be less wait. <br />Have you thought about trying to work out the ratio yourself. The sliding scale is pretty reactive isn't it. You have to try and work out patterns nad then make changes. There is no pattern for toddlers activity or eating from what I can tell. <br />I meet some more lovely families at Jelly Beans camp. I'll try to introduce you to some if you are keen. Love to you.Melissahttps://www.blogger.com/profile/17168423954416466539noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-44785880109642959992011-08-28T01:00:30.976+10:002011-08-28T01:00:30.976+10:00I hate when doc's make you feel like that. I ...I hate when doc's make you feel like that. I want to run from my appt's too, though I suppose I HAVE to be there. I think of how hard it must be for you, trying to manage D in your child...I have such a hard time doing it sometimes for myself...can't imagine trying to manage it for someone else. I hope you are feeling less stressed now. We are here for you!!!! Big ((Hugs)) to you Jules.Meaganhttps://www.blogger.com/profile/08350974950751807282noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-55653024330562151322011-08-27T19:48:00.574+10:002011-08-27T19:48:00.574+10:00Same as everyone else. I lost 35 kilos over the 2 ...Same as everyone else. I lost 35 kilos over the 2 years before Mr 11's diagnosis. In the 18 months since then I've put most of it back on. I can't focus on myself anymore. Sigh. I keep thinking there will be a light at the end of the tunnel. At least I'm sleeping now as we don't have to keep up to Mr 11 in the night unless he's sick. Let go of the stuff you don't need to do. Blog if it helps but not if it becomes another chore. Give yourself permission to be who you are. Hugs.Melhttp://www.tuataragirl.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-40759959966655773622011-08-26T15:20:16.087+10:002011-08-26T15:20:16.087+10:00you are definitely not alone Jules. sometimes i am...you are definitely not alone Jules. sometimes i am so exhausted of the middle of the night checks, corrections, bg finger pokes, basal rate changes, etc...just the whole never-ending-ness of it. Sending big HUGS out to you and I hope you have a better weekend. :o)sky0138https://www.blogger.com/profile/02085600646732450220noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-75167942089275777932011-08-26T04:06:47.386+10:002011-08-26T04:06:47.386+10:00I took a break too, mostly over the summer and par...I took a break too, mostly over the summer and partly because the boys were running me crazy at home, but partly because I needed a break. Take it. But come back. Write for therapy when you need too. Know you are not alone. And I also did a "baggage" check in the spring. We changed churches over it. And it was all d-related in one way or another. It's hard, but healthy sometimes. Again, take the break, but don't isolate yourself. We are all here. You can do this.Amy Ledererhttps://www.blogger.com/profile/02234638502645023830noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-18012371356183903532011-08-26T02:48:08.014+10:002011-08-26T02:48:08.014+10:00Do you have another endo option?? Sometimes a doct...Do you have another endo option?? Sometimes a doctor(of any kind) can be great, but just don't fit. Might be worth looking into. <br /><br />You are not alone. If nothing else, ALWAYS remember that. I remember that "robotic" stage. Sometimes I still pay it a visit for a period of time. Like right now. <br /><br />Baggage sucks, its unnecessary and it is way to heavy to haul around. IMO!<br /><br />Hang in there! You are strong. (((HUGS)))Lorahttps://www.blogger.com/profile/07192247387107228743noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-54543050757899531102011-08-26T01:49:32.944+10:002011-08-26T01:49:32.944+10:00You are not alone at all. I think you are complet...You are not alone at all. I think you are completely normal to be feeling like you are. I wish the docs would listen to what you want, because YOU are the one dealing with this day to day.<br /><br />For what it's worth... I was very unhappy with our treatment plan, and wasn't getting anywhere with the educators, so one day I just decided to figure it out on my own. I logged and tested like crazy, made notes, documented foods, and from there I was able to figure out an I:C ratio for Elise and her correction factor. We now have MUCH tighter control, and I am happier doing it this way. BUT... it was a lot of work, and it took awhile to figure it all out. <br /><br />I hope things calm down and get easier for you asap. I know what a beating this disease can be.Joannehttps://www.blogger.com/profile/15030783893373288244noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-52283364480223621082011-08-26T01:35:25.882+10:002011-08-26T01:35:25.882+10:00Jules you are so not alone. It's been kicking...Jules you are so not alone. It's been kicking my ass lately, too. I am the same about the endo appts, I go but the whole time I feel defensive. And we have a rockstar team there, I just hate hearing any areas where I am lacking. I keep reminding myself, I am a human not an organ and will never truly be a perfect pancreas no matter how I try. It is hard feeling like we HAVE TO keep our kids safe from the harms of d or they'll grow up with no limbs, blindness, and kidney damage - yep, I'm that dramatic in my inner dialogue to myself. <br />I know that I have had to cut a lot out of my life to make it work, but recently I decided the one thing that had to give was sleep. I now make sure that I get at least a four hour chunk somewhere in the night meaning TJ HAS TO get up and do all that comes with a check by himself so that I am not a raging lunatic the next day! <br />I've also stopped doing things that I feel I "should" and just do things I need to AND want to do, I know it sounds weird, but it's helped. Laundry doesn't get put away as quickly, but I have been enjoying playing soccer with the kiddos more. <br />I wish I were there to be with you, to sit and watch the chickens (but chickens freak me out!), I hope you truly know you're never alone in these feelings. <br />Take care :)Sarahhttps://www.blogger.com/profile/03210820513382353417noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-90020658763404920362011-08-25T22:00:01.981+10:002011-08-25T22:00:01.981+10:00No Jules, you are not alone in the feeling of not ...No Jules, you are not alone in the feeling of not recognizing yourself and in needing to "purge" the boat so-to-speak. I think of you often and am so glad that you posted!!!<br /><br />And...<br /><br />The life of a chicken seems simple...and kinda boring. xoAnonymoushttps://www.blogger.com/profile/00895126112651188056noreply@blogger.comtag:blogger.com,1999:blog-3854908515120917420.post-18103051604444702712011-08-25T21:57:13.369+10:002011-08-25T21:57:13.369+10:00Sorry about the stress.. Hope you feel better soon...Sorry about the stress.. Hope you feel better soon. Glad you can sit back and watch the chickens a few min... I have done that also..kinda of calming :)<br />Love and prayersMistyhttps://www.blogger.com/profile/14934596244945217384noreply@blogger.com