We get in there, and Reuben is noisy, as kids his age are. He is asked to leave the room. (Yes the diabetic patient should leave the room, whatta?) Im like, frick, lemme breastfeed him to keep him quiet. Then as the endo studies Reubens paper log of bgl's, he begins quizzing Danger Dad about blood sugar readings. Danger Dad has no clue, hes at work at that time... The endo promptly orders DD out of the 'hot' seat and orders me in. Theres a student endo of some sort in the room, whom we are not introduced to, who acts like a mute, and who is staring holes in me with his beady judgemental eyes.
So Im sitting there and it goes like this -
Why did you test then? Cos I was scared he seemed low.
What time was that? Dont know, after lunch could be anytime between 12.30 and 5pm.
What were you looking for? Dunno. Lows. Or Highs.
So he goes to bed at this time, and wakes up at this number, what does THAT tell you? Dunno, draw a blank. Honestly didnt even want to understand the question. I was annoyed.
What did he eat for breakfast, say, yesterday? I have no idea.
And more of the same. For those that havent had a diabetic 8 month old, 10 month old, 1 year old, now feisty and active 20month old.... its really chaotic and tough. Parenthood is tough. Anyone that says different, that its all rewards and no hard slog is a L I A R.
Thats a boldfaced dirty stinking lie. *shaking head* Dont beleive it.
Add in a special need of any sort, Downs, speech difficulties, ASD, PPD, ADHD, Auditory processing, Aspergers, Foetal alcohol syndrome, Epilepsy, other autoimmune issues, its a handful and you all deserve a medal.
And a year long all expenses paid vacation to Hawaii :) However, I cannot help you with that situation lol.
So, I guess what my point is today, is, we are starting to see evidence of lows, other than using a BGL to tell us. Our protocol was to test 3 hourly for Justin.
If you dont get any idea why your baby is crying, it isnt a nappy or tiredness. He isnt hungry or thirsty, it could be diabetes. Doesnt matter that it doesnt fit into a time slot in the log book. So we would test with such regularity to be S.A.F.E. Mr Endo. SAFE. Jus' keepin my son alive.
Today we went to pick my eldest son up from a playdate and hung out with the sweetest woman I know. I mean shes lovely. We had a chit chat. Shes really pretty, humble and going through some tough times and shes stronger than she knows because shes shouldering a big load. Back to my point, it was like having a conversation in a war zone, according to Danger Dad we had 5 kids running around her lounge room and the family dog being harrassed. I think it aged us all. haha. Reuben begins his whingy behaviour and I say to Danger Dad hes pretty whingey and stacks it a few times....and he played pretty hard this last hour, perhaps hes low?
My hubster runs to the car, gets the test kit. Reuben is 2.9.
He chugs a juice. Then a lolly pop.
Then it hits me. Im starting to see a FEW signs of lows.
He sometimes says allaalelelelelah belelelellalalala. When hes not calling the dog, he can be low. And now he whinges and cries and falls over heaps. Perhaps this is the end of our additional testing...
Perhaps we can do breakfast, lunch, dinner, before bed and over night without so much fear.
Without 5 extra tests a day for Justin.
I got a bunch of photos to share that Danger Dad mostly took, and sorting thru them, they are all blurry or faulty... so heres a bit of our life in photos.
My eldest son at a presentation afternoon, where we were invited to hear their speeches. His teacher caught me before school to tell me hes just sailing through his work, and that hes really funny. I guess he didnt get that off me. lol.
Reuben recently, 20 months.