Well, we are really slow here, and really freaking expensive.
JDRF say that a CGM will benefit-all-people-with-type-1-diabetes. The system available here is used with the Medtronic insulin pump. Click here for more info from Medtronic . The insulin pump itself is $8,000. From what I understand the CGM component costs an initial outlay of $1,250 to buy the medtronic MiniLink REAL-Time transmitter and the sensors are extra and ongoing.
Wait for it - $725 for a pack of 10, or $310 for a pack of 4.
(Wait should I fill a shopping cart with food for my family, oh hang it lets splurge on a box of sensors!)
Keep in mind that one sensor is recommended for only 3-6 days of use....?
But wow, if only we had the consumables available on the NDSS, subsidised or partially, or accepted by private health insurers as essential to care and management of type 1 diabetes. Part of my reservations about going onto a pump is that I dont know what his BGL's are doing now. Most of our tests are essential night time ones sometimes 5+ that I scrimp a little on the day times ones.
I have to be honest. I wish I knew what was going on in Reubens little body and some days wish I could poke him hourly to check. Im the sort of person who likes to know. I want to get better control and see trends, but for the sake of his poor little baby fingers (which are already developing hard black spots scattered around the perimeters of his fingertips and toes) I dont.
All I get is a number. Theres no trend. A snapshot in time, you dont get the whole motion 'picture.' Amongst the benefits of continuous glucose monitoring is reassurance, that confidence that it should alert you should your glucose level get out of 'range'. Also we could SEE what the patterns are, following particular foods or activities. Something Im interested in; having such a young diabetic; is the Low Glucose Suspend function that helps prevent severe hypoglycaemia. It is equipped with an automatic insulin shut off so that the pump can suspend insulin delivery for 2 hrs when glucose falls to preset levels.
Its frustrating to get his BGL up above 10 for bed. Ive fed him some low GI food like custard or baby formula. I wake up to alarms at night because I know he hypos virtually every night between 2 and 3 am, now with what seems no hypo-awareness. I wish wish wish that the technology thats available would make its way through beaureaucracy and red tape and filter its way down here to us and baby Reuben.
For heavens sake we dont even have tubeless insulin pumps yet... I think I might write to our health minister.